DisabilityResources.org is
a virtual library of information about websites serving the
disability community. It includes thousands of the best disability
resources on the Internet, selected and annotated by the
staff of Disability Resources Monthly and alphabetically
arranged by subject for easy access. This is a wonderful
site because it provides helpful reviews of the sites, not
merely links.
“Information is power! Most people with disabilities
can live, learn, love, work and play independently and in
the mainstream of society, but they often need information
to achieve their goals: information about legal rights, financial
resources, assistive technology, employment opportunities,
housing modifications, childrearing and educational options,
transportation and mobility services, and more. This information
is available from a wide variety of resources - nonprofit
organizations, government agencies, books, pamphlets, magazines,
videotapes, and online - often at little or no cost. Finding
it, however, isn't always so easy.
Disability Resources is a nonprofit organization that monitors, reviews, and
reports on these resources every day.”
Disability Resources combs the web regularly to find the
best resources available, reviews each site, and then organize
them by topic or disability. Disability Resources disseminates
information about available resources to consumers and family
members.
The
DRM WebWatcher is an easy-to-use online subject guide
to the best disability resources on the Internet. It features
hundreds of topics and disabilities, each on a separate
page. Each topic or disability page includes links to the
best web sites, documents, databases, and other informational
materials of national or international interest.
The
DRM Regional Resource Directory is a guide to state
and local agencies and organizations in the United States,
organized by state.
NICHCY.org is
the website of the National Information Center for Children
and Youth with Disabilities. NICHCY is the national information
and referral center that provides information on disabilities
and disability-related issues for families, educators, and
other professionals. Its special focus is children and youth
(birth to age 22).
To identify services in your state (in the United States),
click on State
Resources.
This site also includes a vast list
of disability organizations,
including Clearinghouses of information on specific disabilities
or conditions and National Organizations, organized by type
of disability or diagnosis. The website of each national
organization includes a great deal of useful information.
Because information is usually organized by the disability
or condition clinical it is important to get information
about a child's specific disability as soon as possible.
When children have a relatively rare condition, visit the
website of the National
Organization of Rare Diseases.
Parent
training and information centers (PTIs) in each state
provide training and information to parents of infants,
toddlers, school-aged children, and young adults with disabilities
and the professionals who work with their families. This
assistance helps parents participate more effectively with
professionals in meeting the educational needs of children
and youth with disabilities. PTI staff members are parents
with lots of experience.
Early intervention programs are available in every state
and territory in the United States. Research has demonstrated
that early intervention is helpful for children and parents.
The law establishing early intervention programs resulted
in programs for babies and children (ages 0-2; called Part
C programs) and programs for preschool children (ages 3-5;
called Section 619). The terms "Part C" and "Section
619" refer to specific sections of the legislation that
established these programs.
Find the person responsible for early intervention programs
(and their telephone numbers and Emails) for babies
and children (ages 0-2) in every state and territory,
Find the person responsible for early intervention programs
(and their telephone numbers and Emails) for preschool
children (ages 3-5) in every state and territory,
Fathers. Wonderful information especially for dads can be
found at Fathers
Network. The mission of the Fathers
Network is to celebrate and support fathers and families raising
children with special health care needs and developmental
disabilities.
Sisters and brothers. Families are concerned about their "other" children--children
without disabilities. The Sibling
Support Project is a fine
resource.
Parentpals.com is
a special education guide for parents and professionals.
It offers special education support, special education teaching
ideas and tips, special education continuing education ,
disability specific information and more. Covers a wide range
of topics.
CanChild
Centre for Childhood Disability Research in Hamilton,
Ontario, Canada is a center for childhood disability research
that seeks to maximize the life quality of children and
youth with disabilities and their families. Research programs
at CanChild concentrate on children and youth with disabilities
and their families within the context of the communities
in which they live. Its focus is on the interrelationships
between individuals, their families, communities, and health
systems. The focus of research conducted by CanChild is
broad, and includes children and youth with physical, developmental,
and/or communicative needs who require rehabilitation services,
as well as their families.
Children with cerebral palsy often do not grow at the same
rates as other children. Researchers at the Kluge Children's
Rehabilitation Center & Research Institute at the University
of Virginia Medical Center are trying to find out why. Learn
more about this research or participate in the North American
Growth
in Cerebral Palsy.
The Starbright
Foundation helps to empower seriously ill
children to live richer, more fulfilling lives. Using an
innovative combination of technology, health care, and entertainment,
STARBRIGHT strives to ensure that no child need sacrifice
quality of life to an illness. Its programs are creative
blends of medical information and emotional support designed
to fill critical gaps in health information, offer seriously
and chronically ill children a sense of peer support, validate
their feelings and help them to develop crucial coping skills. Family
Village is a global community of disability-related
resources. It integrates information, resources, and communication
opportunities on the Internet for persons with cognitive
and other disabilities, for their families, and for those
that provide them services and support. It includes informational
resources on specific diagnoses, communication connections,
adaptive products and technology, adaptive recreational
activities, education, worship, health issues, disability-related
media and literature, and much, much more!
The
Sexual Health Network provides easy access to sexuality
and disability related information and resources to help
support children and adults with disabilities, parents,
and professionals in this sensitive and specialized area.
Mitchell S. Tepper, Ph.D., M.P.H., is the Founder and President
of The Sexual Health Network.
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