A wheelchair is a tool
of liberation, not confinement. With the right wheelchair, quality
of life increases dramatically. In Choosing a Wheelchair, longtime
chair user and ergonomics consultant Gary Karp guides you through
the selection process to help you identify the chair that can provide
optimal independence.
Summary
A wheelchair is a tool of liberation, not confinement.
With the right wheelchair, quality of life increases dramatically—even
people with severe disabilities can have a considerable degree
of independence and activity.
People selecting a chair for the first time can be distracted
by their emotions, overwhelmed by the number of features t consider,
and unsure of their part in the selection process. Experienced
chair users might know about features on their present chair
that don’t work well, but are probably not aware of all
their options with a new wheelchair.
In Choosing a Wheelchair, longtime chair user and ergonomics
consultant Gary Karp guides you through the selection process
to help you identify the chair that can provide optimal independence.
He covers such topics as:
• The wheelchair as a mobility tool
• The selection process and your part in it
• How to compare manufacturers (including smaller, niche
manufacturers)
• Basic choices such as: Power or manual? Fixed frame
or folding?
• Features and options for both power and manual chair
users
• Paying for the chair
• Wheelchair maintenance
A primer on wheeling technique
Introduction
1. The Wheelchair Revolution
2. Large Versus Small Manufacturers
3. Who Pays for Your Chair?
4. The Selection Process
5. Your Role
6. The Basic Choice: Manual or Power
7. Manual Chair Decisions
8. Power
8. Chair Decisions
9. Cushions
10. Seats and Backs
11. Footrests
12. Tires, Casters, and Suspension Systems
13. Tilt/Recline Systems and Positioning Systems
14. Armrests, Clothing Guards, and Accessories
15. Wheelchair Maintenance
16. Wheeling Style and Technique
Conclusion 149 Manual Chair Features and Options
Power Chair Features and Options
Resources
Bibliography
Contributors
Index
From Chapter 4. The Selection
Process
Selecting a wheelchair is a major decision. It is
all the more daunting if you are new to the experience. If you’ve
been dreading the moment when it would be necessary, the prospect
of having to choose a chair probably feels more like an unpleasant
task—or maybe a sentence to prison—than a shopping adventure.
Perhaps you expect a recovery, so you wonder why you should even
bother to get a wheelchair at all. No matter how true it is that
you might recover, if your physician is recommending a wheelchair,
odds are your mobility will be limited for at least a while. There
is still a lot of wisdom in getting the right chair. It will optimize
your mobility, minimize your fatigue, keep your spirits up by allowing
you to be more active, and protect you from hazards that can result
from the wrong chair, including some that can impede your recovery.
You will want to maintain the best possible health. The right wheels
will help you do exactly that.
The professionals who are advising you will talk with you about
many issues and options. They will ask you a lot of questions. They
may give you catalogs for a variety of chairs that have all kinds
of features to choose from. It will likely seem overwhelming. You
might think, “Just sell me a wheelchair!”
The best advice is to relax. This is a process that takes time,
and it is extremely important not to rush it. You’ll have
much to learn and many questions to consider. If you find the right
people to work with, they will help you identify the chair that
will make it possible for our to have the fullest possible life
you disability allows. Inform yourself. Trust your advisors, and
trust the process. This chapter will encourage you to begin shopping
for your wheelchair when it is time, explains that roles of those
who will advise you, and discusses a typical consultation.
I love the
idea of putting knowledge often possessed only by professionals
into the hands of new consumers. Gary Karp has done it. This book
will empower people with disabilities to make informed equipment
choices.
--Barry
Corbet, Editor, New Mobility magazine
Karp, an
ergonomics consultant and wheelchair user, has produced a practical
and well-written guide, highly recommended for disability/rehab
and consumer health collections.
--
Library Journal
The process
of getting a wheelchair can be confusing and frustrating. Gary Karp
gives readers the information they need to understand the many options
they have, and overcome some of the obstacles they might face. Choosing
a Wheelchair is an excellent resource for consumers as well as professionals
who are learning how to advise them.
--
Michael Boninger, M.D., Executive Director,
Center for Assistive Technology,
University of Pittsburgh
Choosing
a Wheelchair is a warm, user-friendly book that goes right to the
core of what is relevant when selecting a chair. Gary Karp has a
sensitive…understanding of the wheelchair user's perspective,
and skillfully guides readers through the many decisions they will
face as they determine the best possible chair for their needs.
--
Jody Greenhalgh, O.T.R, Rehab Therapy Supervisor
Stanford University Hospital
Email your review to reviews@disabilitiesbooks.com
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I've been paralyzed with a spinal cord injury
for 26 years, since I fell out of a tree and broke my back
in 1973 when I was 18, unable to move my legs the moment after
I hit the ground from 25 feet up. Being a chair user has been
very a different experience from what I imagined it to be
at the time. This is my main interest. To correct the widespread
misunderstanding of disability.
This is what my book Life On Wheels is about--to address
the misconceptions people bring to their experience of disability.
I believe these myths drags out the process of adaptation,
wasting time having to get over culturally-ingrained beliefs
which are not true. There is enough to adjust to with a disability,
so the more one is able to realize how much potential for
meaning remains in their lives--even with a "significant"
disability--the sooner that optimal life can be reached. Plenty--in
fact most--people with disabilities have already proven the
case.
Now I am using my disability experience and my abilities
as a writer to clarify what the disability experience is about.
It is not about being "crippled," nor is it about
being needy. In fact, people with disabilities are capable
of much greater levels of independence than many in the able-bodied
public imagine. Most of us live pretty normal lives. We work,
we travel, we have fun, we have friends, and we are sexual.
The burdens of disability are often more a matter of obstacles
in the built environment, public policy, and general cultural
attitudes. Most people with disabilities are not looking for
sympathy. They want control of their own lives, and that is
the gist of what independence is about. Even if you are being
assisted, it is a question of who is in control, and that
defines your independence.
I live in Northern California, play music, juggle, tend my
gardens. I am also a consultant in computer ergonomics, helping
companies protect their employees with training and workstation
visits. The work is about being comfortable while you work,
and about being protected from potentially disabling cumulative
trauma injury. I am also a frequent speaker at meetings for
individuals with disabilities and their family members as
well as for rehabilitation professionals. To contact me about
a speaking engagement, please write me at gkarp@disabilitiesbooks.com
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